Marbles

So here’s the thing about loss. When something really awful happens, you begin to realize how little control you have over things. And that maybe something bad can happen again. And it’s terrible.

I’m paranoid and anxious. A lot. I try really hard to reason with myself and be realistic, but man there are just some times when it is really difficult to let my guard down. In my 41 years of life there has been so much damn loss. And grief. And trauma. So much of who I am and how I react now is a trauma response.

Let me preface this story by stating that everything turned out fine. Earlier this week I was in the living room on the floor working out. My littles were on the other side of the couch playing with marbles and magnets. I was less than five feet away. I could hear them giggling and goofing around. Then I could hear something in their mouths and my ‘Momdar’ went into hyper drive.

As soon as I popped up to ask them what they were doing, I could hear a slight choke/cough and my 3 year old Perry began crying, saying she swallowed something. To say I panicked is an understatement. I completely freaked out.

She swallowed a 1/4″ steel ball. At first I thought it was a magnet and then I really started to panic. I called her doctor and was told that the NP would call me back soon. It was a long 20 minutes.

I called my husband who convinced me the marble wasn’t magnetic. That made me feel a little better. I was convinced we would have to go to the hospital and they would have to open her up. During Covid. I was freaking out she could have aspirated it. Every awful scenario played out in my head. I was texting and googling like a madwoman hoping to find someone who had gone through this before and could guide me.

The worst part was that I was right there when it happened. I was maybe 3-4 feet away from the kids and she still swallowed the damn marble. I was a second too late in realizing that my kids were making very poor choices. And I was really angry at myself. And my kids of course, because they both know better than to put stuff in their mouths. But they are just kids. And I’m the adult.

But I couldn’t prevent it. I couldn’t predict it would happen. And I felt completely out of control. And anxious. And really angry that I was fearing for my child’s safety again. I’m pretty sure I aged another 10 years in those 20 minutes.

The NP called and wasn’t concerned. It was a good thing it was small, it was a good thing it was round, because it wouldn’t get stuck. Even if it had been a magnet that’s fine as long as it’s just one. I breathed a huge sigh of relief.

Here’s the thing about trauma, the small things become big things. They send you completely down the rabbit hole. Just when you think you have something figured out, life throws you a curve ball. This was my reminder that I cannot control every situation. It was a reminder to give myself a little grace.

Oh, and that marble, came right back out.

12 Days of Memories-Day 4

What did your child cherish more than anything? Is there something that you have that reminds you of them? A picture, or an object?

Benny had a blanket. A simple white hand crocheted blanket that went everywhere with him. He was like Linus. He slept with it and dragged it with him. And I mean every where. I would have to steal it and wash it whenever possible.

After he first died, I slept with it every night. It took forever for me to wash it because I didn’t want to lose his scent. That blanket now sits at the foot of my bed. I try to bring it every where with us when we travel. It shows up in family pictures so that Benny is always represented. Now I drag it everywhere with me. ❤️

12 Days of Memories-Day 1

2020 is really hard. Grief in 2020 is really hard. Parenting in 2020 is really hard. Parenting a dead child in 2020 is really hard.

So I decided to do 12 Days of Memories leading up to Christmas. Maybe it will make this final stretch into the holidays easier. Maybe it will make it harder. I have no idea. I just know that my grief needs some acknowledgement this year.

Day 1-Tonight was Compassionate Friends Candlighting for all of the Children lost too soon. What a perfect place to start. We lit our candles for Benny and all the other children I know whose parents miss them.

A wave of light seems like the perfect way to kick this off. Benny only celebrated one birthday. When I think of all of the candles that he missed blowing out over the years, it’s like a punch to the gut. We still still sing to him every year and celebrate his life. But it’s so damn hard. It’s hard to celebrate the life that you carried for nine months and all of the hopes and dreams that you had for them. It’s hard to realize that you only have the past and the memories to hold onto. A flame that shone so bright and was burnt out too soon.

The Stockings Are Hung

Every year we hang Benny’s stocking for Christmas. And every year we each write him a letter, draw him a picture, etc. To include him in our Christmas.

Sometimes it happens on Christmas Eve, some years on Christmas day. Sometimes it happens as we take the stockings down for the year and that’s ok. It’s our way of including our little guy.

As I was pulling out the notes to look this year, my heart hurt. It’s crazy to think that there are so many letters. Long ones, short ones, scribbles and everything in between. I found mine from 2013 and I don’t think I’m ready to go there yet. Maybe one day.

It’s been a long road. And it keeps going. Sometimes it’s windy and bumpy, other times it’s straight and I know where I’m headed (or at least I think I do). Sometimes it feels like a very lonely road and other times I am surrounded by so many others. But it’s my road and I know I will walk it until my last breath.

Brave

I’m not feeling very brave. I’m feeling very beaten down and tired. I’m feeling overwhelmed by the fact that it has been 7 years since Benny died. And maybe if the world wasn’t a disaster, and school wasn’t a mess and work wasn’t overwhelming I could spend 5 minutes actually acknowledging this very fact.

My soul is weary. Maybe even more so than it was 7 years ago. The constant reminder of death, the statistics and the faceless people is too much to bear. Because I know how absolutely soul crushing it is for these families to have to try to pick up the pieces. But I don’t know how they do so in the absence of hugs and physical touch.

I don’t think that I’m fighting so much right now as I’m surviving. It seems to be a constant game of defense, as something new rears its ugly head to contend with. I don’t feel like I’m pushing away the waves as much as I’m being slammed by them. Over and over as I try to right myself and swim again.

Trust me, I very much want to give up some days. I want to get in my car and drive until I’m somewhere, anywhere. I want to be done with 2020 and all of its constant reminders to ‘enjoy every moment, because you never know when it will be your last.’ If anyone knows about death and loss, it’s me. My bingo card is filled to the brim. It’s overwhelming to constantly be reminded of this.

But I’m here. And tomorrow’s another day. And hopefully I will find my 5 minutes of peace with my grief. And if it’s brave to just exist right now, to just be, then maybe, just maybe, I am brave.

Those Back to School Photos

I’m beginning to see the smiling faces of all of my friends kids on social media, all gussied up for the first day of school…or remote learning…or homeschool. With everything going on over the last 6 months, I had forgotten.

No I didn’t forget Benny had died, the rainbows and I drove by the cemetery the other day blowing kisses and saying a hello. I had forgotten that yet another school year has begun. Another milestone has been missed. Another memory will never be.

This is a messed up year in a lot of ways and maybe that’s why it didn’t occur to me until I saw a child Benny’s age. They were all dressed up and smiling for their first day of 3rd grade. I cannot believe that he should be starting starting 3rd grade. I cannot believe that it has been that long.

I just had to sit and do the math over and over, because it’s hard for me to rationalize in my mind that he should be 8 years old right now. While this year has provided me with time with my living children, it has kept me so busy that I feel I have neglected time with my dead child. Time in general in 2020 seems to be an abstract concept.

So I’m sitting here, with really tired eyes because it’s been another busy day. And my head is spinning as our new school year is right around the corner. And I just needed to make some space. I needed to take a moment and wrap my head around the picture that I should be taking of my crazy 8 year old guy as he starts whatever version of school we would have chosen, without the guise of loss hanging overhead.

I can almost see the smile with those dimples. I can almost hear him and Darcy rough housing and bickering like my rainbows do. I can imagine that he would be a mess before I even had a chance to take a picture. Because he was always into something. I can almost feel the hug that I have been dying to give him since 2013 when this whole disaster started.

Another school year, another landmark missed. That’s the thing with grief, you don’t just lose somebody all at once, but rather in pieces, over time. My god, I miss you buddy.

Late to the Hamilton Party

We just finished watching Hamilton here tonight. There’s just so much to digest. I’m still not even sure what we watched because not only was it visually stunning and musically unique, there were so many phrases/lyrics that struck me.

‘There are moments that the words don’t reach
There is suffering too terrible to name
You hold your child as tight as you can
And push away the unimaginable
The moments when you’re in so deep
It feels easier to just swim down.’

‘There are moments that the words don’t reach
There is a grace too powerful to name
We push away what we can never understand
We push away the unimaginable’

Both of these passages are taken from the song ‘It’s Quiet Uptown’ and are actually about two parents after the loss of their son. I can tell you that I wasn’t expecting this from a musical about Alexander Hamilton.

In the background of the song the cast is singing, ‘they’re living in the unimaginable.’ That’s probably the best way to describe life after child loss. We are living in the unimaginable. No one can understand this life until they are thrown into it.

Another song that struck me was ‘Who Lives, Who Dies, Who tells your story.’ Because that’s what we do as parents of children who are gone. We tell their story. We say their names. We remind people that they were here.

‘And when you’re gone, who remembers your name? Who keeps your flame? Who tells your story?’

This of us that are stuck in the unimaginable tell your story. We remember and we keep your name alive. If you haven’t watched Hamilton, I highly recommend it. It’s beautiful from beginning to end.