Every word of this was like a punch in the gut. But I understood every syllable. Benny was not stillborn, but I can relate to so much of this.
Missing this beautiful face on what should be his 9th birthday. This never gets easier. It just is.
Every year we do some sort of celebration for Benny’s birthday. Covid has obviously complicated this, but last year we did a mini cruise to the cemetery and it worked out great! So yesterday we did another cruise to celebrate this little man’s life with some of the old cars. He would have loved it!
Every year I am astounded by the number of people that show up to support our family. There are people that have been a part of our lives since Parker and I were dating, to new friends that have chosen to walk this path with us. It takes someone truly empathetic to join in this level of ‘real.’ And we are so thankful to have you on our lives.
I often wonder what Benny would be like as he got older. I wonder if he and Darcy would still have been thick as thieves as she enters her teenage years or would he just be an annoying little brother? I wonder if he’d play sports, or would he do dance or spend hours working on cars like his Dad? Would he enjoy school or would he have struggled? I can imagine a million different people he could be, but we’ll never know. And that’s really hard.
It’s hard to know how to celebrate a life so short. It is also extremely important though, for my other children. Darcy was so young when Benny passed and Perry and Fletch never knew him. It makes him real for them. It also allows me to celebrate my child almost like he’s here. I get to take all of that pre-birthday grief and anxiety and put it into something positive.
As we were driving into the cemetery, Adele’s haunting version of ‘To make you feel my love’ came on. We used the lyrics to this song in our wedding ceremony nearly 15 years ago. And let me tell you, we certainly felt the love yesterday. #nocoincidences
Thank you to everyone that came out yesterday to celebrate this crazy dude’s life. It was a beautiful day and it did my soul good to see so many of you that we haven’t over the last year. We are so thankful for our village or ‘Benny’s Bunchers’ that continualy support us.
The day ended with a rainbow over our house. Our hearts are full.❤️🌻❤️
I don’t know how to write this without it sounding horrible. Or totally confusing. Or just completely fucked up (excuse my French). It’s a rabbit hole I try to stay out of because once it starts, it’s hard to stop. And it’s laced with so much guilt.
Once Benny was born, Parker was done having children. I had had always wanted 3, but I was pretty set with being pregnant again and was happy with our little family. So I began to get rid of the baby gear, my way of acknowledging that the baby factory was closed. I had always wanted to be younger when I had my kids because I had lost my own mom so early on in life. It was feeling like a good decision for us.
And then Benny died. Suddenly our little family became too small. Everything felt wrong. It is really hard to wrap your head around someone dying in an instant. I watched my Mom suffer from cancer for 2 years. As awful as that was, it made the end a tiny bit easier. What happened with Benny is completely illogical. I will never understand why he had to die. I will never try to find meaning in it. It just is.
I remember being in my room with Parker the night that Benny died. I remember looking at him and saying I wanted more kids. This was never to replace Benny. I just knew in that instant that I wasn’t done. I wanted Darcy to have more siblings. And Parker felt the same way. We were numb and terrified. The worst had just happened.
We waited almost a year. Then I miscarried. And I was angry. I stupidly believed (again) that more awful things couldn’t happen to me. How completely naive I was.
By some small miracle we had Fletcher and Perry. I know how very lucky we are to have them. Rainbows aren’t promised.
So here in lies he rabbit hole. If Benny hadn’t died, would Perry and Fletcher cease to exist? It’s pretty awful, right? I’d give anything for Benny to still be here and make it all just a horrible nightmare. But how do P and F factor into that?
It’s kind of like, what came first, the chicken or the egg? I can circle the drain a bit if I think too hard about it. But honestly, none of it was ever my choice, it’s just how things happened. I guess there’s a romantic notion in thinking we can change the past.
I used to think about this constantly after Fletcher was born. And then I would feel guilty. Guilty because I would do anything to have Benny back. And then guilty because I would do anything to protect my new baby. It was this awful dance of guilt between the deceased and the living.
As Benny’s birthday comes closer, these are the things I think about. This is the ‘stuff’ it brings up. The missing just gets so hard sometimes.
I quickly changed my clothes and attempted to pull my hair back into a nest on the top of my head. I had no idea why I was so nervous, I’d been going to my same child loss grief group for years now. I felt comfortable talking about the loss of my son and sharing his life with others. I felt like I was in a good place.
A friend had sent over a video of Patty Inwood talking about a new grief group in Rutland named ‘Hope Lives Here.’ My family was building a home in Rutland and had just moved into town to rent while we waited for construction to be finished. We had left the security of our community in Worcester where everyone knew the story of my son’s death and had embraced our family with love.This meeting seemed to come at the perfect time for me. Or, as I would soon learn in HLH speak, #nocoincidences.
I made my way across Main Street to the Rutland Library. As I entered the space where we would be meeting, I was surprised to see how many people there were! I was greeted with a huge smile and ushered into the space to meet Patty. She asked me how I found out about HLH and I told her that I had seen her video and that I had also lost my son. I found myself caught up in a hug instantly. I didn’t expect it and I didn’t realize how badly I needed it either.
We sat down to begin sharing and I quickly realized that myself and one other gentleman were the attendees, everyone else in that room was a volunteer. I should have felt uneasy and in the spotlight, but that never happened. There was something about this incredible group of women that made me instantly comfortable and at ease. I was able to share not only the loss of my son, but also my Mom. Even though I had lost her as a teenager, it helped to talk about that all these years later. It ended up being an incredible evening and I was so glad that I had gone.
That was 3 years ago in April. Every month I kept showing up at HLH meetings. I found my new community in Rutland. Suddenly moving our family there didn’t seem so scary. I have made so many incredible new connections with people that I would never have met if I hadn’t walked in that door.
I have been so fortunate to be able to facilitate the HLH Child Loss Meeting for the past 2 years with 2 of the most incredible Angels. This group of Mom’s and Dad’s have done more to heal my broken heart than time could ever do. Their spirit, love and incredible courage is an inspiration to me. In December I joined the HLH Board of Directors where I am surrounded by so much heart.
Patty is a visionary and a dreamer and she dreams big! I truly believe that ‘we attract love by being love’. And Patty and the HLH founders put something out into the universe that has been answered by some of the kindest souls. Happy 3rd Birthday Hope Lives Here! Keep healing hearts, as you’ve helped to mend mine.
Well, this certainly describes me. And seeing it written out like this almost makes me realize how pointless it is. Almost.
How am I doing? Some days are awesome. I can get through the day and just exist. I don’t feel like I have to weigh every decision in life or death. I can just be.
Other days I panic when my husband takes the kids in the car. What if they all die in a car accident? Or when the kids are wrestling, what if one of them hits a piece of furniture and had to go to the hospital? Or worse? Or what if they choke and I’m in another room? Seeing as how my two littles can’t seem to make any type of good decision lately, this is completely plausible.
I found that when we were out pre Covid that I would always be very aware of my surroundings. I made sure that I knew where an exit was ‘just in case.’ Now Covid has sent me into another spiral of worst case scenarios. Just 2 years ago I rang in the New Year in the PICU with my littlest on oxygen. I know what it’s like being scared my child couldn’t breathe and I know I don’t want to go back to that.
So maybe my hypervigilance is my super power. I don’t want a cape or bat signal to notify others of this, I have a hard enough time trying to keep my own family safe. However, if I’m around your kids, I will be watching them as if they are my own. It’s not because I don’t trust you as a parent, but rather some messed up part of my brain thinks I can save you from the same fate. Maybe I just don’t want anyone to have to go through what we’ve been through.
A huge part of doing this for me is knowing that I feel like I have done everything in my power to prevent something bad from happening. I think I’d like to be able to tell myself with confidence that it wasn’t my fault. Because child loss is so tangled in guilt and self doubt. This ridiculous anxiety is my way of trying to counteract that.
Rationally, I know all of this is crazy. But so is grief and death and trauma. I don’t think imagining worst case scenarios is a healthy use of my time, however it’s now a part of who I am, like PTSD is. And I have managed to learn how to live with it so it doesn’t totally consume who I am. Today. Tomorrow may be different. If I’ve learned anything on this journey, it’s to never expect to ever be perfectly ‘healed’ or ‘over it.’ That simply doesn’t exist when you’ve lost a child. It’s all in learning to live with it.
I have had back pain for as long as I can remember. My posture is terrible from years of dealing with a large bust on a small frame and trying to make myself look smaller. For years I worked in a male dominated field, so slouching my shoulders and scooping my spine came naturally.
There is so much wrong with this that I am aware of now, but being a woman in her twenties and thirties, I just wasn’t able to be comfortable in my own skin. Someone very wise recently talked to me about ‘making herself small to make others comfortable.’ And sadly, that’s what I was doing not only physically, but emotionally.
The car accident that took our Benny also had very physical consequences for me. I’ve written about spraining my ankle and the damage to my shoulder and the road rash. The bruising that occured on my back and side was like nothing I have ever seen. Until this accident, I never knew what a bone bruise was, but it took 6+ months to heal on my left leg and I still have damage. I have scarring on my right shoulder and elbow and my shoulder has never been the same since.
They did X rays at the hospital and I had a follow up with my doctor a few weeks later. But here’s the thing, when your child dies, your physical pain and suffering mean nothing. I knew that the ankle would heal and the bruising would fade.
The first thing that we sought was emotional support from a psychologist. Our family needed all of the help that we could get in processing what had just happened. It was during those months of therapy that it was asked why I wasn’t seeking further care for my injuries. And there’s no simple answer for that.
Maybe holding onto the physical pain was a way to punish myself for what happened. Or maybe it provided me a way to feel anything during those early and dark days. Perhaps it provided a reminder that the accident was actually real. Maybe it was just easier to continue feeling ‘small’ as a means to an end. It was probably all of the above if I’m being honest.
Whatever the case, it took me years to seek help. I finally saw a chiropractor and massage therapist and the doctor again. I’m not sure what the impetus was, or if there was one, but I finally decided it was time. Perhaps I was feeling forgiving towards myself or I was finally tired of feeling ‘small’. But that’s a whole other conversation.
I’ve been doing yoga and dance and stretching at home to try to keep everything feeling good during quarantine. A week ago I started a fascia stretch to work on opening up shoulders and chest and hopefully work on correcting my posture.
Today’s stretch was the hips and the instructor said that we carry emotion there and we shouldn’t be surprised if we cry. I was dubious. I had never heard of that. Guess I was wrong, because let me tell you, it was like someone turned on the water works. During a damn hip stretch!!
This is not like I was in a quiet space and able to get myself into the stretch emotionally. My littles were 3 feet away working on a puzzle and my cats were running around. It was the typical chaos and here I was thinking I would get in a quick stretch.
Because Google is my friend, I read article after article of the hips being a place where we store trauma. In further research in Psychology today I found that the hips and jaw are aligned and store so much of the flight or fight response based on one study.
I think sometimes that we forget how closely our bodies are connected to our emotions. Here I am 7 plus years out crying over a 5 minute hip stretch. I’m only halfway through this program, but I’m curious to see what else my body has to tell me about my current mental state.
I’m the one that drives 12 in a 40 during a snowstorm because I’m scared of crashing.
I’m the one that panics when the 3 year old sleeps through the night, because she usually doesn’t.
I’m the one that cries at doggie daycare drop off because I’m afraid of my puppy with the other dogs.
I’m the one who tries really hard not to go into stores and religiously wears her mask.
I’m the one that decided to keep her daughter remote during a pandemic because she’s scared of it.
I’m the one who lost her mom to cancer at 16 and her Dad to bad lifestyle choices at 39.
I am the one who was hit by her car in her driveway and watched her son die.
I am the one with PTSD, anxiety and probably a myriad of other issues.
I am the one that doesn’t necessarily live in fear, but has lived too much in reality.
I am the one that has seen too much, lived too much loss, yet still really hopes it will all just be ok.
This is what is left and I’m tired of apologizing for whom I’ve become.
So here’s the thing about loss. When something really awful happens, you begin to realize how little control you have over things. And that maybe something bad can happen again. And it’s terrible.
I’m paranoid and anxious. A lot. I try really hard to reason with myself and be realistic, but man there are just some times when it is really difficult to let my guard down. In my 41 years of life there has been so much damn loss. And grief. And trauma. So much of who I am and how I react now is a trauma response.
Let me preface this story by stating that everything turned out fine. Earlier this week I was in the living room on the floor working out. My littles were on the other side of the couch playing with marbles and magnets. I was less than five feet away. I could hear them giggling and goofing around. Then I could hear something in their mouths and my ‘Momdar’ went into hyper drive.
As soon as I popped up to ask them what they were doing, I could hear a slight choke/cough and my 3 year old Perry began crying, saying she swallowed something. To say I panicked is an understatement. I completely freaked out.
She swallowed a 1/4″ steel ball. At first I thought it was a magnet and then I really started to panic. I called her doctor and was told that the NP would call me back soon. It was a long 20 minutes.
I called my husband who convinced me the marble wasn’t magnetic. That made me feel a little better. I was convinced we would have to go to the hospital and they would have to open her up. During Covid. I was freaking out she could have aspirated it. Every awful scenario played out in my head. I was texting and googling like a madwoman hoping to find someone who had gone through this before and could guide me.
The worst part was that I was right there when it happened. I was maybe 3-4 feet away from the kids and she still swallowed the damn marble. I was a second too late in realizing that my kids were making very poor choices. And I was really angry at myself. And my kids of course, because they both know better than to put stuff in their mouths. But they are just kids. And I’m the adult.
But I couldn’t prevent it. I couldn’t predict it would happen. And I felt completely out of control. And anxious. And really angry that I was fearing for my child’s safety again. I’m pretty sure I aged another 10 years in those 20 minutes.
The NP called and wasn’t concerned. It was a good thing it was small, it was a good thing it was round, because it wouldn’t get stuck. Even if it had been a magnet that’s fine as long as it’s just one. I breathed a huge sigh of relief.
Here’s the thing about trauma, the small things become big things. They send you completely down the rabbit hole. Just when you think you have something figured out, life throws you a curve ball. This was my reminder that I cannot control every situation. It was a reminder to give myself a little grace.
Oh, and that marble, came right back out.
Attempting to start this whole ‘falling in love with myself’ is freaking hard! I joked about following some steps that I found on Google. But I really need to sit down and research exactly what steps I need to take and what I know will best work for me. It’s time to do some serious research and soul searching.
In the meantime, I am attempting to alter my mindset (if possible). I tend to be a sarcastic realist and that comes out as negative a lot of the time. And let’s face it, it’s been really hard to stay positive this last year.
Reading about all of the death happening around the world is horrifying. Especially because I can understand how these families feel. But I didn’t lose anyone in a time of Covid and I can’t begin to imagine the lack of control/closure these people must feel. The world’s suffering weighs heavily.
Back in January I began a playlist of positive and upbeat songs. I keep adding to it and I’ve been playing the bag out of it. Music is so good for the soul and can set or reset your mood. I’m loving how it can help me turn down the volume in my head to all the negativity I constantly feed myself.
It’s very helpful when I’m driving and some ass is tailgating or has their high beams on. I’ve noticed it helps to keep me calmer and kinder. I’m trying to remind myself that I have zero idea of what is happening in that person’s life and to have some grace (there is that word again).
When we have family dance parties a lot of these songs are ones that I chose to play. Because they are fun and crazy and loud, and sometimes your soul just needs that. We love to dance and I find I sleep better and smile more on the nights when we shut off the lights, turn on the $15 disco light and blast ‘Firework’ or ‘Lovely Day’. It creates this instant connection amongst my varied age brood and everyone joins in.
There have been homeschool days where the littles and I are just dragging. The whining begins and my patience wears thin. I know the curriculum calls for Chopin, but sometimes you just need some ‘Good Life’ to get you through.
We all know the lyrics to just about every song on the list. And I’m hoping it’s having the impact on my children’s mindset that it’s having on mine. Because I need the positivity in my life right now.
Below is my list, what else can I add?