Sunshine, Angels and Rainbows

Taking Care

I was among friends over the weekend, and there is a woman that I consider one of the most grief evolved people I have ever met. I am in awe of her ability to speak honestly and openly and be completely vulnerable. The only time that I feel like I am able to do that is through writing. So here we are.

She said something that resonated with me. And made me think about stuff I apparently had buried pretty deeply because I haven’t thought about it in a long time. I started to think back to when my mom died.

Now, we’re talking nearly 27 years ago. I’ve lived longer on this earth without my mother than I did with her. Being a mom myself, that realization makes me very sad.

Some 27 years ago I was 16. My mom had been diagnosed with breast cancer when I was 14, roughly a week or two before I started high school. She was sick and in and out of the hospital, my freshman and sophomore years. My dad was an alcoholic disaster. He struggled to keep it together when things were good. My mother’s diagnosis and impending death pushed him completely off the wagon for good.

I remember when my mom first got sick that my sister and I had to start doing our own laundry. My mom had written out on index cards how to sort and wash everything and taped it to the cabinets above the washer. There’s so much more that I wished she’d left instructions for. Like how to live without your mom.

I will never forget the phone call in the early morning hours of May 25th. And my sister crying. I’ll never forget that feeling, like the Earth shifted on its axis. We knew it was coming, but it doesn’t make it any easier. I remember the last time we visited her and she was barely conscious. I knew in that moment that time was up. What I don’t understand is why we weren’t there. Why did we leave? Why weren’t we there with her when she died? Was it my father’s choice? I hate that she was alone. Why didn’t I ask if we should be there? Why didn’t anyone else? I will regret this forever.

I wish she had left instructions on how to deal with my father. After she died things got bad. He was never around and when he was, he was drunk. And either mean or depressed. I had to learn how to take care of myself. No one cared about my grades or where I was or what I was up to. My father’s grief was so bad that the rest of us ceased to exist to him. He died on May 25th with my mom. And as the only other person in our house, I was left to pick up the pieces. And it was terrible. But I didn’t know what else to do. Or how to fix it. So I just grinned and beared it. I was fine. Everything was fine.

I wish she left instructions about how to handle my grief. Because we didn’t talk about stuff back then. It was just expected that my mom died and I had to move on. And parent my alcoholic father. And create these awful trauma patterns that I would spend the rest of my adult life trying to break. And it’s really hard to unlearn that you can actually depend on people. That you can actually ask for help. Or that you can actually say no. Or that your worth isn’t just tied to caring for/doing things for everyone else.

And I miss my mom. Because no one has come close to taking care of me like she did. There are so many times when I cried out for her. When I was in labor with Darcy, pretty much anytime I’m sick, and the ambulance ride after Benny and I were hit by my car. Because I needed her to make it better. And 26 years with her being gone, I still do.

We Almost Made it

When Covid hit in 2020, I was scared shitless. I had enough anxiety in just trying to get through every day and convince myself we would be ok. And then we were thrown into a pandemic.

We washed our groceries. We wore our masks. We stayed home. I celebrated every time another one of us was able to be vaccinated. Because I was scared. And you can sit there and tell me all that you want about the chances of any of us getting really sick. Because statistically speaking, my Bennett should be alive too. So numbers are meaningless to me.

I lived in panic. None of us were technically high risk, however anytime we got sick, Perry (my youngest) got REALLY sick. At 6 months it was an ER trip with the flu because she couldn’t keep any breast milk down. At 18 months it was 2 ER trips and an Urgent Care visit before we finally landed in the PICU for 4 days. On oxygen. With Pneumonia. In the same hospital where my son was pronounced dead 5 years earlier. I feel like my anxiety over her is justified.

And it finally happened, we got Covid. I knew we would get it eventually and I had honestly made my peace with it after we were all vaccinated. That shot gave me the tiniest amount of hope that maybe things could be normal for us again.

I didn’t even know that I had Covid until I was 4 days in, I thought it was just a really, really bad migraine. Thankfully I wasn’t around too many people besides my husband (and we were at a work event😬). I test us at the first sniffle and I honestly tested myself on a whim when we got home. And it was positive.

When I tested positive, I ran to Walmart curbside the next day and had them fill my trunk with every cough and cold serum known to man. I had no idea if any of it would actually work, but I wanted to have it all on hand.

We made it 2 days and I was actually convinced that I had contained it to myself. And then everyone started falling like dominoes. One positive test after another. Perry’s one test never came back positive, but she started in with a fever and cough.

And then she just couldn’t stop coughing. We tried everything, brought her outside, used a humidifier, cough drops, sleeping elevated. For 24 hours she coughed and coughed and coughed. And I was terrified. We broke out the pulse oximeter that I bought at the beginning of Covid and saved ourselves a trip to the ER. Because I was ready to go. But her oxygen levels were perfect. Thank goodness.

This has been my worst nightmare since March of 2020. And that probably seems crazy to some, but once you truly understand how fragile life is and how quickly it can all change, all bets are off. Thankfully, after a week of rest, we are back at it.

I’m Out

I took the summer off. From everything. I gathered my children and we had adventure after adventure. And it felt so right. And I felt really content for the first time in a long time.

I didn’t take a break from grief so much as she took a break from me. I spent a lot of time thinking about things and looking at them from a different perspective. I made peace with so many things I’ve carried for so long. But that’s another story.

The reason for writing is actually a story in itself. I’ve been reading again! Being able to let go of some things has really helped and for the past few months I’ve been devouring books. And loving it.

I was an avid reader before Benny died. It’s just another one of those secondary things that was also taken from me. I can’t explain it. I tried to get back into reading over and over again. I did read a few books here and there, but I either couldn’t focus, or I’d lose interest. So I gave up.

I’ve gotten big into Colleen Hoover. I love her writing style. I love the conflict that she builds as you sit there and question if the character is a good or bad person. Or are they just human and made a mistake?

So I started Verity.

I barely made it through the first sentence. Never mind the remainder of the page. I closed the book and took a breath. I decided to continue, against my better judgement. I didn’t get too far into the book before I found out that one character just lost her mother to cancer and another main character lost 2 children and his wife was in a car accident (this is all revealed in the first chapter, so I’m not spoiling much).

Nope. Nopity nope nope nope. I made it maybe a chapter and a half in and I had to Google. I had to know what I was getting myself into. So many triggers. Too many triggers for me. I’m out. I will have to pass on this one. Maybe this was why I stopped reading in the first place.

How should you be 10?

I can hardly believe it. You should be 10 today. Two whole hands. Another milestone missed. Another birthday where we celebrate you in your absence. And I try to wrap my head around the fact that any of this is actually real.

The hardest part is the missed pieces of you. You were so young, but had such a big personality. Out of all of your siblings, you were definitely the chilliest and the only one to sleep through the night. Temper tantrums weren’t really your thing. You were just so completely different, your own person. You were always up to something, climbing something, getting into something. It was entertaining and teriffying to witness.

I wonder who you’d be at 10. Would you still have blonde hair? Would your blue eyes have changed to more of a green like your brothers? Would you be playing sports? Would you be on the mountain skiing with us? This seems like a silly question given your fearless attitude and thirst for adventure. Would you still love the old cars the way your father does?

Would you and Fletcher be the best of friends? Making me completely crazy with your boy antics? Would you and Perry share a special bond as your personalities are so similar? Would you still be close with Darcy? The two of you were truly matched in every way and you looked up to your big sister and wanted to do everything that she did.

It’s hard to know who you would be at 10. It’s been so long since I’ve laid my eyes on you that I can’t even comprehend you as a grown up child. And it’s super sad. I’m super sad. And I miss you. And I wish you were here with us instead of us planting vegetables and sunflowers and singing happy birthday to an empty chair at the table. Nearly 9 years later and it doesn’t hurt any less.

Happy Birthday buddy❤️🌻

Happy Teacher Appreciation Week!

My mom was a teacher her whole life, so teachers hold a special place in my heart. I always loved going to school with her, setting up her classroom and being involved in the various school activities that she ran. It was always so important for her to be involved in her students lives and make learning fun.

I think back to all of the incredible teachers that helped to shape my own life. My health teacher in seventh grade had us work on a ‘life’ project where we had to somehow illustrate our future plans. I drew a floor plan and he ended up showing it to a friend who was an architect. Guess what I studied in College? In 8th grade I wrote an opinion essay on a current news article and my teacher asked me if I actually wrote the first paragraph. Not in an accusatory fashion, but rather she said it was a compliment because she liked the writing.

I had Mr Newcombe for English in 11th grade who strongly suggested that I read Pride and Prejudice for a project. All of my children’s names are now out of Jane Austen novels and my two littles middle names are Jane and Austen. This book had a huge impact on me and is (clearly) still a favorite today. These people helped to shape who I have become as a person. And I am so thankful for their encouragement and guidance.

Darcy was in Kindergarten when Benny died. She was our first in school and we really didn’t know the community well. When Benny died, Darcy’s Kindergarten teacher, Mrs. Borus, showed up. She came to his services. She had all of Darcy’s classmates make cards for her (which I still have today).

We received a letter in the mail from another teacher in our our district. She gave us such great information on programs for children and loss and was just incredible in her vulnerability. Darcy (thankfully) had Ms. O’Connell in first grade. It was a huge relief to me know that she was being taken care of emotionally in school as well.

When we moved, Darcy was in fifth grade and switched districts. I was nervous, we had been surrounded by so many incredible teachers and families that knew our story. I had to reach out to a new principal and teacher and explain Darcy’s background. Mrs. Sullivan welcomed my daughter and our family with open arms. Darcy had the best 5th grade year and sobbed when it was over.

Darcy entered Junior High in 2019, right before the pandemic. This was truly her first experience with switching classrooms and teachers. And I don’t know if she won the teacher lottery, but they were all incredible. They did the best they could with a really shitty situation and supported my child incredibly through the hardships of working at home. She definitely struggled and there were some tough days when I had to reach out to some of the teachers and explain what was happening at home because they couldn’t see it firsthand. And they just handled it amazingly time and time again. We have been very lucky to have these incredible people be such a huge part of our daughter’s life.

Last fall was tough. I had homeschooled Fletcher for kindergarten so he was really entering the classroom for the first time in first grade. He was also the first child I had sent to school since 2013. I was an emotional wreck. I reached out to his teacher prior to him starting school and explained Benny’s death and our family situation. It’s one of those things I’ve become pretty adept at over the years. Fletcher is extremely different than Darcy though, he has no problem standing in front of a classroom of his peers and talking about his brother who has died. Fletcher craves connection and is one of the most vulnerable people that I know. I honestly think it’s his superpower.

Once again we were gifted not only an incredible teacher but an amazing partner in his education and emotional growth. I am so lucky that this woman is in my son’s life. He misses her during the weekends and over vacations. She has been an incredible lifeline for us as parents as we struggled with Fletcher’s learning this year. She has also been an incredible asset that has allowed him to share Benny so openly.

I had to email Mrs. Macaruso last night to let her know that Fletcher is struggling with the end of the school year. He is extremely sad that he will not be able to see her everyday in second grade. I am extremely sad that I will not have this incredible human as his teacher next year. She not only made this transition from home easy for him, but easy for me as well. We all love Mrs. Macaruso!

I can keep going and going. My children have been so lucky to have so many incredible people to look up to in their lives. They have also had incredible daycare, preschool and dance teachers who have helped to shape who they are now. I am lucky as an adult to have some incredible teacher friends who have changed me and who I am. I’m looking at you Miss Patty and everyone who helps at Hope Lives Here. Or the teacher friends that have joined us in our grief.

Thank your teachers. Show them some love this week. Let them know the impact that they have had on your children and you as a parent.

Either I’m Getting Old or…

Something. My body is tired and tight. My head aches, everything is out of alignment. My chiropractor couldn’t even crack me. Years of trying to hold it all together have finally caught up with me. I think that when your body is in fight or flight mode for so long, it’s really, really hard to decompress.

I look at the above graphic and literally have every single symptom from the shoulders up. My shoulders are tight, which leads to my neck and then my jaw and then my aching head. Apparently I’m clenching my jaw so tight that I fractured a tooth in my sleep (didn’t even know that you could do that). My damn body is tired. Because my mind is tired.

I think that I had a whole year off to grieve Benny. I had a year to sit in it and let it wash over me. Unlike after my Mom’s death I had some time to process things. And it was a truly healthy start to this whole process. For the first time I felt like I was actually dealing with my stuff instead of shoving it down deep.

But we all know that grief doesn’t have a timetable and I wasn’t magically healed after a year. But I was pregnant. And facing a whole new set of anxieties I couldn’t have imagined. And then sleepless nights and chaos. And then 2 years later in the thick of all of that again with the next baby whilst we moved 4 times until we were finally home. And I loved every moment of it (besides the whole moving part).

Things finally settled a little bit for us and I could catch my breath and then boom, Covid. The whole world is thrust into a grief unlike any other. And everything kept changing and we just kept having to adapt.

I feel like I have been in fight or flight mode since 2013. And I am truly, truly exhausted. With the chaos came very little time for me to continue processing the fact that my son died. Sometimes it’s much easier to lean into the crisis of the moment rather than to face your own reality. Because the reality is that my son died. And it’s fucking awful.

So here we are. I’m ready for a good crack from the chiro. I’m going for a massage to try to clear some of that tension. It’s time to start going through some of this stuff that I’ve been holding onto and to try to change how I’m living. Because I’ve been fighting this battle for so long and my soul is just exhausted.

Resolutions

This is what grief hoarding looks like. This is what it looks like when both of your parents are gone and you’re desperately trying to hold onto every piece of them. This is what it looks like when your son dies and you’re holding onto your memories of him. It is exhausting. It overwhelms me.

It’s extremely hard to be objective about what to keep vs. what to toss. Even with my alive children. Because what if I throw something of theirs away and the unthinkable happens? I remember being very cavalier about Benny’s artwork, because he was the second child. We already had so much from Darcy. And after he died I remember regretting that I had tossed something he had created. I had unwittingly thrown out one of our memories of him.

I am envious of the people who still have their parents. They actually have people who hold memories of them. They don’t need all of this ‘stuff.’ It’s really hard to figure out where to draw the line of what I want to keep of my parents. I have a huge box of albums, clothes and tons of knock knacks. Do I really need the stuff sitting in boxes? If it’s not out in my house is it necessary to hold onto? I wish I had an answer.

I cannot stand the amount of stuff that we have. We just filled a trunk with donations and the truck with trash and I feel like we didn’t even make a dent. The stuff overwhelms me. But then the thought of having to make a decision of what to keep and what to toss overwhelms me.

So I’m starting small. I’m going to begin with the Seasonal decor. I’m hoping that if I start small, with the stuff that I’m not emotionally attached to, it will help me feel better. Maybe I’ll keep going and maybe I won’t. Maybe I will finally tackle some of my grief items. We will see. But this is not my resolution.

I see how things are going and we seem to be sliding backwards, pandemic-wise. So the only resolution I have this year is to give myself a little grace. Which was the exact same resolution I had last year. And you know what I’m okay with that. I hope to clean the basement, I hope to declutter my life, but if those things don’t happen I also hope to not make myself feel bad. Because changing how I view resolutions from physical things that I can see into personal growth, is so much more important. Happy 2022.

Holiday Presents

Every year we lay out all of the kids gifts to make sure that the piles look as even as possible. We’re dealing with some crazy age ranges, but I try really hard. My son’s pile looked meh.

He’s 6 years old and I worry so much about him being overindulged. He’s our rainbow son following his brothers death. It’s kind of hard not to spoil him. I’m lying. It’s kind of hard not to spoil all of the kids. But the last thing that I want to do is create another entitled male in this world.

I really tried to reign in Christmas a bit this year. We went crazy last year because of Covid and experience gifts were not going to happen. My kids already have SO MANY TOYS. I didn’t want to add to that. I do a pretty good job of finding deals or buying second hand, so cost wasn’t really a factor. I just didn’t want all the stuff.

Until I looked at the piles. Mostly smaller items. And I got really sad. We tend to buy our kids more stuff because we don’t have much family. My kids miss out on so much with my parents gone. I grew up in a HUGE family with lots of cousins and Aunts and Uncles. So many traditions lost and so much time they never got to spend with my family. They never had the grandparents to spoil them. And it sucks.

We have a stocking hanging on our fireplace that we fill every year with notes. There will always be an empty seat at our table for 6. They are missing their brother. I have one less child to enjoy the excitement of the holidays with. And that sucks.

So here I sit feeling really shitty and really sad. I’m trying to compensate for something that my children probably don’t even realize they are missing. But I know what it’s like to look forward to big family gatherings. I know what it’s like to play with my cousins and grow up enjoying the holidays with them. Obviously, Covid complicates that too this year.

So I may have added a few things to my cart tonight. And I’m begging myself to not feel bad about it. I’m trying really hard to not spin out about if I’m ruining my kids by giving them too much. I’m choosing to look at it that they are only little once. And if I’m being over the top, so be it. I’m still trying to figure out this whole grief/life balance stuff. But I’m tired of feeling guilty about it.

It’s the Most Wonderful Time of the Year

When I was growing up, the holidays were magical. I have so many great memories of gathering with family, singing Christmas Carols, baking and of course, presents! For all of my Dad’s faults, he was super into Christmas. He was one of the rare men that actually enjoyed shopping and put a lot of thought into his gifts. Decorating our house was a huge deal every year. We would get the biggest Christmas tree and spend hours putting tinsel on it. We had a 4′ wreath that went on our chimney along with a plastic Santa. My Mom spent hours wrapping presents for us kids and desperately trying to replicate her Mother’s recipes (which I still find nearly impossible). It was merry and bright.

When my Mom passed, all of that Christmas Spirit seemed to die with her. My Father was a shell of his former self and we all just went through the motions. I remember that the first Christmas without her consisted of me shopping for everything and wrapping it all (including my own gifts). My sister and I had to take my Dad to the ER on Christmas Eve because he was sick (looking back, it was probably too much alcohol and a broken heart more than anything) and we were up late. No one got out of bed on Christmas until 5 PM. It was terrible. Gone was the magic.

Once I moved out, I vowed that I would create my own Christmas magic. When I had my own apartment, there was always a live Christmas tree. I started making my own Christmas traditions. And even though I spent some Christmases alone, nothing was as brutal as that first Christmas after my Mom died. Until my son died.

It’s really hard to get through the holidays when your heart is so heavy with grief. My Mom died 25 years ago and my son 8 years ago. I’ve celebrated more Christmases without both of them then I have with them. And it still guts me. Every. Damn. Year.

The first Christmas after my son died was a stumble. I honestly felt like a puppet as others pulled the strings and I went about the motions. I had no idea what the right thing was to do. Do we hang his stocking? His ornaments? Do we keep our family traditions? How do we honor him?

That whole day I smiled on the outside while I silently screamed on the inside. Christmas shouldn’t still come without my son. The days shouldn’t have kept creeping by and time shouldn’t have been in motion. My world had stopped on November 8th and anything where we grew further from that date made no sense to me.

It was really hard to watch her opening gifts, knowing her brother should have been there too. It was hard to enjoy the cookies, knowing how much he loved his sweets. It was hard to take pictures, thinking he should be in them. It was hard to recognize that this was our ‘New Normal’.

I’ve written about a few things that we now do previously https://sunshineangelsandrainbows.com/2021/12/03/my-christmas-grief/. The only thing that I vowed that first Christmas was that it was still magical for our daughter. The magic had completely died for me at that point and that was ok. But by god, it had to be over the top for her. She needed to find something to look forward to, something good to believe in, and something hopeful that she could carry with her. And if that came in the form of presents and food and togetherness, then I was ok with that. I was ok with anything that would help us get through that first Christmas.

And that first Christmas turned into our second, third, and now eighth Christmas without our son. And I miss him so very much every single day. The holidays are still brutal, but I find that doing stuff to honor him helps to heal my broken heart just a little bit. And as much as I hate to admit it, I’ve even found a little Christmas magic again myself. The grief and missing are still very much there, but the love that I have for my Mom, my Dad and my son have become my puppeteers during the holiday season.

My Christmas Grief

Thanksgiving is over and now we head into the holidays of family and love. Christmas has been a really hard time for me ever since my mom died. I’ve worked extra hard to make it special for my kiddos. It’s also some place productive that I can put all of this stuck, grief energy.

A few years back another lost mom had posted the Christmas tree she did in memory of her son. Another friend had recommended using all of the metals from the 5K that we do in Benny’s memory as ornaments. That began the ‘Benny Tree.’ I love that he has a space in our home and our hearts for the holiday. My kids also enjoy decorating it and looking at all the pictures and medals.

The year that Benny died we started writing him notes in his stocking. They stay in there all year long and get packed away with the Christmas decorations. Someday his stocking will be full again but at least in the meantime it’s still funny on the fireplace with the rest of the family’s.

Last year I started sponsoring a child for Christmas that is the age Benny would be. It’s sad and hopeful all rolled into one. I love that I get to help someone out and I still get to shop for a boy Benny’s age. I wonder what he would be into and what would be on his Christmas list. And it’s heartbreaking.

It’s taken me 8 years to come up with what makes our holiday feel ‘good’ again. It’s organic and it changes as we change. Right now it just allows me the space to still parent Benny, even though he’s on the other side. If it ever gets to be too much or doesn’t feel right, then we won’t do it. But for now, I look forward to my grief traditions.