12 Days of Memories-Day 1

2020 is really hard. Grief in 2020 is really hard. Parenting in 2020 is really hard. Parenting a dead child in 2020 is really hard.

So I decided to do 12 Days of Memories leading up to Christmas. Maybe it will make this final stretch into the holidays easier. Maybe it will make it harder. I have no idea. I just know that my grief needs some acknowledgement this year.

Day 1-Tonight was Compassionate Friends Candlighting for all of the Children lost too soon. What a perfect place to start. We lit our candles for Benny and all the other children I know whose parents miss them.

A wave of light seems like the perfect way to kick this off. Benny only celebrated one birthday. When I think of all of the candles that he missed blowing out over the years, it’s like a punch to the gut. We still still sing to him every year and celebrate his life. But it’s so damn hard. It’s hard to celebrate the life that you carried for nine months and all of the hopes and dreams that you had for them. It’s hard to realize that you only have the past and the memories to hold onto. A flame that shone so bright and was burnt out too soon.

The Stockings Are Hung

Every year we hang Benny’s stocking for Christmas. And every year we each write him a letter, draw him a picture, etc. To include him in our Christmas.

Sometimes it happens on Christmas Eve, some years on Christmas day. Sometimes it happens as we take the stockings down for the year and that’s ok. It’s our way of including our little guy.

As I was pulling out the notes to look this year, my heart hurt. It’s crazy to think that there are so many letters. Long ones, short ones, scribbles and everything in between. I found mine from 2013 and I don’t think I’m ready to go there yet. Maybe one day.

It’s been a long road. And it keeps going. Sometimes it’s windy and bumpy, other times it’s straight and I know where I’m headed (or at least I think I do). Sometimes it feels like a very lonely road and other times I am surrounded by so many others. But it’s my road and I know I will walk it until my last breath.

Brave

I’m not feeling very brave. I’m feeling very beaten down and tired. I’m feeling overwhelmed by the fact that it has been 7 years since Benny died. And maybe if the world wasn’t a disaster, and school wasn’t a mess and work wasn’t overwhelming I could spend 5 minutes actually acknowledging this very fact.

My soul is weary. Maybe even more so than it was 7 years ago. The constant reminder of death, the statistics and the faceless people is too much to bear. Because I know how absolutely soul crushing it is for these families to have to try to pick up the pieces. But I don’t know how they do so in the absence of hugs and physical touch.

I don’t think that I’m fighting so much right now as I’m surviving. It seems to be a constant game of defense, as something new rears its ugly head to contend with. I don’t feel like I’m pushing away the waves as much as I’m being slammed by them. Over and over as I try to right myself and swim again.

Trust me, I very much want to give up some days. I want to get in my car and drive until I’m somewhere, anywhere. I want to be done with 2020 and all of its constant reminders to ‘enjoy every moment, because you never know when it will be your last.’ If anyone knows about death and loss, it’s me. My bingo card is filled to the brim. It’s overwhelming to constantly be reminded of this.

But I’m here. And tomorrow’s another day. And hopefully I will find my 5 minutes of peace with my grief. And if it’s brave to just exist right now, to just be, then maybe, just maybe, I am brave.

Mary Poppins Returns

I watched Mary Poppins Returns tonight for the second time and I am again obsessing over how well grief is normalized/portrayed/handled in this movie.

The first time I watched it I sat sobbing in the theater. I wasn’t prepared for the amount of triggers in the movie. When I say triggers, I mean in the very best way. Because I sat there watching Disney talk openly to kids and families about death. And grief. And it made me so very happy that they had created a movie surrounding a very hard topic that had some very great messages.

The music in that movie had me sobbing. Song after song I needed tissues as I listened to the lyrics that I felt I could have written. Because I lived them. And they resonated with something deep inside. Again, in the best way possible.

A Conversation

‘This year has gone by in a blur
Today seems everything’s gone wrong here
I’m looking for the way things were
I know you’d laugh and call me tragic
For everything’s in disarray
These rooms were always full of magic
That’s vanished, since you went away’

This song, a conversation between Michael Banks and his deceased wife, guts me. It is so hard to carry on after our people are gone. And it is so hard to do so without feeling some sort of guilt or failure. Not that’s there’s a right or wrong way to grieve, but my goodness it is so very hard when there are children involved. It changes everything.

Where the Lost Things Go

This song gets me every time. Every single word in this song is beautiful. And true. And I love that it is used for a lullaby.

‘Do you ever dream
Or reminisce?
Wondering where to find
What you truly miss
Well maybe all those things
That you love so
Are waiting in the place
Where the lost things go

Memories you’ve shed
Gone for good you feared
They’re all around you still
Though they’ve disappeared
Nothing’s really left
Or lost without a trace
Nothing’s gone forever
Only out of place’

Trip a Little Light Fantastic

I love how this song talks about being ‘lost’ and in a ‘fog’. I think we can all agree that is exactly how it feels. Sometimes you are in the fog, unaware and lost. In grief, we all just need our own leary. And maybe sometimes it’s a person, or a pet or whatever when we can’t find our own light.

Those Back to School Photos

I’m beginning to see the smiling faces of all of my friends kids on social media, all gussied up for the first day of school…or remote learning…or homeschool. With everything going on over the last 6 months, I had forgotten.

No I didn’t forget Benny had died, the rainbows and I drove by the cemetery the other day blowing kisses and saying a hello. I had forgotten that yet another school year has begun. Another milestone has been missed. Another memory will never be.

This is a messed up year in a lot of ways and maybe that’s why it didn’t occur to me until I saw a child Benny’s age. They were all dressed up and smiling for their first day of 3rd grade. I cannot believe that he should be starting starting 3rd grade. I cannot believe that it has been that long.

I just had to sit and do the math over and over, because it’s hard for me to rationalize in my mind that he should be 8 years old right now. While this year has provided me with time with my living children, it has kept me so busy that I feel I have neglected time with my dead child. Time in general in 2020 seems to be an abstract concept.

So I’m sitting here, with really tired eyes because it’s been another busy day. And my head is spinning as our new school year is right around the corner. And I just needed to make some space. I needed to take a moment and wrap my head around the picture that I should be taking of my crazy 8 year old guy as he starts whatever version of school we would have chosen, without the guise of loss hanging overhead.

I can almost see the smile with those dimples. I can almost hear him and Darcy rough housing and bickering like my rainbows do. I can imagine that he would be a mess before I even had a chance to take a picture. Because he was always into something. I can almost feel the hug that I have been dying to give him since 2013 when this whole disaster started.

Another school year, another landmark missed. That’s the thing with grief, you don’t just lose somebody all at once, but rather in pieces, over time. My god, I miss you buddy.

She Understood

There were many people that showed up and sat with us for months after our loss. They came with food and drink and presents for Darcy. There was so much honesty and connection through these visits. My work family was a big part of this.

When Benny died people were pretty amazing. We talk so much about the people that have disappointed us, but in truth there were so many that stepped up to help us too. We were lucky to be surrounded by love.

There were many people that showed up and sat with us for months after our loss. They came with food and drink and presents for Darcy. There was so much honesty and connection through these visits. My work family was a big part of this.

One of my co workers ‘C’ came by a few times to spend time with us. I remember sitting in my living room, or going out to dinner with her and her fiance. It was easy and a good distraction for us. She was one of those people who was able to hug me and cry and even though she didn’t have children of her own, she was able to empathize. That meant the world to me then.

Fast forward a few years and I was asked to write a letter about my boss and how he had supported us through our grief. Because of who he is and what he does for those around him, he won Core Net’s Service Provider of the Year. Parker and I were invited to the event and I was terrified to go.

This was 3 years after Benny had passed. I had since quit my job and had been working with Parker growing our antique automobile business. Fletcher the rainbow was 1 year old and we were surviving. I had been avoiding the reality that I had lived a whole other life for a long time. For 7 years I had built relationships with clients, contractors and vendors alike. This event would force me to face all that I had lost/given up professionally.

When we got there, I was nervous. I knew that we would be sitting at a table with some of my past clients and I knew that I would see others from the industry. I remember taking a deep breath and walking up the stairs, and there to my surprise was C. Now C had just had her first child about 6 months prior. I was so happy to see a familiar face and I ran to give her a big hug. And she started crying. And then I started crying. Because I knew in that moment that she understood.

Now as a mother, she understood my loss at a deeper level. I was sad for her because she realized the magnitude of love that comes with carrying and having a child. And I think for the first time she clearly realized what we lost. So we cried and hugged. We didn’t need to say anything because we both understood. And I felt seen. My loss felt acknowledged all over again.

I wish that I could say that the rest of the night was as great as that single moment, but it wasn’t. It was awkward as all hell. I was awkward. And I’m okay with that. I stepped out of my comfort zone. I accomplished something that I had been avoiding. And that single moment made the whole night worth it. Thank you C.

Late to the Hamilton Party

We just finished watching Hamilton here tonight. There’s just so much to digest. I’m still not even sure what we watched because not only was it visually stunning and musically unique, there were so many phrases/lyrics that struck me.

‘There are moments that the words don’t reach
There is suffering too terrible to name
You hold your child as tight as you can
And push away the unimaginable
The moments when you’re in so deep
It feels easier to just swim down.’

‘There are moments that the words don’t reach
There is a grace too powerful to name
We push away what we can never understand
We push away the unimaginable’

Both of these passages are taken from the song ‘It’s Quiet Uptown’ and are actually about two parents after the loss of their son. I can tell you that I wasn’t expecting this from a musical about Alexander Hamilton.

In the background of the song the cast is singing, ‘they’re living in the unimaginable.’ That’s probably the best way to describe life after child loss. We are living in the unimaginable. No one can understand this life until they are thrown into it.

Another song that struck me was ‘Who Lives, Who Dies, Who tells your story.’ Because that’s what we do as parents of children who are gone. We tell their story. We say their names. We remind people that they were here.

‘And when you’re gone, who remembers your name? Who keeps your flame? Who tells your story?’

This of us that are stuck in the unimaginable tell your story. We remember and we keep your name alive. If you haven’t watched Hamilton, I highly recommend it. It’s beautiful from beginning to end.

Pandemics, Paranoia and Loss

I am having a hard time putting into words what I’ve been feeling the last few days. Anxious is probably a good place to start. Maybe followed by feelings of vulnerability and lack of control. I’ve been feeling exactly how I felt right after the accident and Benny died.

It’s hard to even write that because nothing concrete has even happened to trigger these feelings. It’s the not knowing what is next with Covid-19 that is eating away at me. I am struggling.

I’m feeling overwhelmed as both a small business owner and a mom. But I’m mostly feeling overwhelmed as someone that has witnessed tragedy close up. It causes me to pause and panic. I want to know all that I can so I can best prepare for whatever outcome we may face when this is all over. And call me crazy, call me paranoid, that’s fine. My reaction is my own and is a reflection on my life and my experiences.

So we may make choices that you don’t agree with concerning ourselves and our family. We may be a little more paranoid and a little more afraid than you.

I’ve held my son as he died. This is not something that I share lightly, but rather to explain that we will take every step that we can health wise and financially to keep ourselves from going through something like that again. I know that children seem pretty safe with this virus and Parker and I are also pretty low risk. But there are no guarantees in this life. And unfortunately, we know that all too well. I will do anything to keep my children safe from hurt.

I also would never want to pass this sickness onto someone that is immunocompromised or elderly. That alone is enough to keep me home and minimally at work. I don’t want to be the reason that someone else has to suffer.

I’m scared. Loss has scarred me in a way in which I will never heal from. It makes me anxious when others may be complacent. It makes me recognize each little thing that can wrong every day.

It has also taught me about love and hope. And I don’t take either of those lightly. I am humbled by the amount of both that are part of my every day life. And I desperately need to hold onto them in the coming days to see me through.

I have no idea where this ends or what will happen. Just know that if you have suffered loss and this Virus is leaving you on edge and feeling completely vulnerable, you are not alone. It’s ok to not be ok. We will get through this easier if we can acknowledge this and realize that we are all in this together. ❤️

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